It was my last year of middle school 8th grade when I was diagnosed at 14 with Rheumatoid arthritis. I grew up at Lake Tahoe, the most lovely and outdoorsy place to grow up. Sports were a passion, I loved volleyball, softball, basketball, and summers were always spent swimming in the frigid waters of Tahoe. Everything changed about my childhood in the blink of an eye. The first times I noticed something was amiss with my body were scary and quite painful experiences. After many, many doctor appointments, I was given the diagnosis of R.A.
Rheumatoid Arthritis (RA) At A Glance
• Rheumatoid arthritis is an autoimmune disease that can cause chronic inflammation of the joints and other areas of the body.
• Rheumatoid arthritis can affect people of all ages. (Learned that for myself)
• The cause of rheumatoid arthritis is not known.
• Rheumatoid arthritis is a chronic disease, characterized by periods of disease flares and remissions.
• In rheumatoid arthritis, multiple joints are usually, but not always, affected in a symmetrical pattern.
• Chronic inflammation of rheumatoid arthritis can cause permanent joint destruction and deformity.
• Damage to joints can occur early and does not correlate with the severity of symptoms.
• The "rheumatoid factor" is an antibody that can be found in the blood of 80% of people with rheumatoid arthritis.
• There is no known cure for rheumatoid arthritis.
• The treatment of rheumatoid arthritis optimally involves a combination of patient education, rest and exercise, joint protection, medications, and occasionally surgery.
• Early treatment of rheumatoid arthritis results in better outcomes
. The first years were by far the worst, within a few months I was crippled. I could not do the most basic of tasks. I would be up all night with agonizing pains just raking my body. Saddest of all I could not attend school anymore and sports vanished from my life, I dream often at night that I am spiking a volleyball or playing softball. (Albeit pain free) I often felt alone as the whole internet craze was not around then, so finding others to relate to did not happen. Those first 5 years were brutal.
Now at 34 it seems strange to know I have been sick longer then I was healthy. I guess it does make it easier to not have much reference to living any other way. The last three years I have been on the R.A drug cocktail of methotrexate, plaquenil, and sulfasalizine. Honestly it doesn’t seem to work most of the time and if I am still flared at my next visit, we again move to injectables. My previous experiences with gold shots and steroid shots was like having molten lava injected into my body. I have tried most everything at one time or another. For a few years it was 34 vitamin pills everyday and lots of cod liver oils and peanut oils. Other times I rebelled and would take nothing, that never worked out in my favor.
I hope one day they find a cure so I don’t have to live out the rest of my days with it and that nobody else has to either. You can help by supporting the Arthritis Foundation and there continued research into cures.
http://www.arthritis.org/rheumatoid-arthritis.php
I have found many online resources and groups with men and women dealing with the same daily issues associated with a chronic illness and that is truly a wonderful thing. Some informative sites and pages:
http://www.facebook.com/#!/nationalrheumatoidarthritissociety
http://www.facebook.com/#!/pages/Sunshine-Lollypops-Bringing-Rheumatoid-Arthritis-out-of-the-Clouds/141439825891393